30th June 2023 Programme
Please click here for a PDF of the Programme
09:25 | Welcome and Introduction Jonathan Gallichan – Consultant Paediatrician, Derriford Hospital |
09:30 | Palliative care for children with epilepsy – Latest guidelines and case discussions Charlotte Mellor – Consultant in Paediatric Palliative Care, BRHC Emma Heckford – Palliative Care Paediatrician & Medical Director, Charlton Farm Hospice |
10:30 | Latest updates of Childrenʼs Epilepsy Surgery Service (CESS) activity Michael Carter – Consultant Neurosurgeon, BRHC |
11:00 | Coffee Break |
11:30 | Update on antiseizure medications – including cenobamate, fenfluramine & sodium valproate Rachel Crampton – Paediatric Neuroscience and Palliative Care Pharmacist, BRHC |
12:00 | Use of ketogenic diet when a family refuses all drug treatment – case update Helen Sammons – Paediatric Consultant and Lead for Epilepsy, North Devon District Hospital |
12:30 | Reflections on 20 years of SWIPE Peta Sharples – Consultant Paediatric Neurologist, BRHC |
12:40 | Lunch Break |
13:40 | Home Telemetry – Experience and practice in Plymouth Andrew Smith – Senior Clinical Physiologist (Neurophysiology), Derriford Hospital |
14:25 | Febrile Infection-Related Epilepsy Syndromes (FIRES) Victoria Wilson – Paediatric Registrar, Torbay Hospital Fayadh Fauzi – Paediatric Neurology Clinical Fellow, BRHC |
15:10 | Coffee Break |
15:30 | SWIPE today – opportunity for reflection and discussion Open session, including discussion of OPEN-UK, Epilepsy 12, and PCES; and potential initiatives and priorities for the next 5 years |
16:00 | Feedback, wrap-up, and dates for future meetings |