30th June 2023 Programme

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09:25Welcome and Introduction
Jonathan Gallichan – Consultant Paediatrician, Derriford Hospital
09:30Palliative care for children with epilepsy – Latest guidelines and case discussions
Charlotte Mellor – Consultant in Paediatric Palliative Care, BRHC
Emma Heckford – Palliative Care Paediatrician & Medical Director, Charlton Farm Hospice
10:30Latest updates of Childrenʼs Epilepsy Surgery Service (CESS) activity
Michael Carter – Consultant Neurosurgeon, BRHC
11:00Coffee Break
11:30Update on antiseizure medications – including cenobamate, fenfluramine & sodium valproate
Rachel Crampton – Paediatric Neuroscience and Palliative Care Pharmacist, BRHC
12:00Use of ketogenic diet when a family refuses all drug treatment – case update
Helen Sammons – Paediatric Consultant and Lead for Epilepsy, North Devon District Hospital
12:30Reflections on 20 years of SWIPE
Peta Sharples – Consultant Paediatric Neurologist, BRHC
12:40Lunch Break
13:40Home Telemetry – Experience and practice in Plymouth
Andrew Smith – Senior Clinical Physiologist (Neurophysiology), Derriford Hospital
14:25Febrile Infection-Related Epilepsy Syndromes (FIRES)
Victoria Wilson – Paediatric Registrar, Torbay Hospital
Fayadh Fauzi – Paediatric Neurology Clinical Fellow, BRHC
15:10Coffee Break
15:30SWIPE today – opportunity for reflection and discussion
Open session, including discussion of OPEN-UK, Epilepsy 12, and PCES; and potential initiatives and priorities for the next 5 years
16:00Feedback, wrap-up, and dates for future meetings