Programme

MARCH 2019 PROGRAMME 

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09:30 – Registration and coffee

10:00 – Welcome / Housekeeping

10:05 – CDKL5 Centre of Excellence / Ganaxolone Clinical Trial
             Dr Sam Amin, Consultant Paediatric Neurologist, BRHC

10:40 – A – Z of Treading Water as a CDKL5 Family
            Carol-Anne Partridge, Chairperson CDKL5 UK

11:00 – Coffee Break

11:30 – Children’s Epilepsy Surgery Update
             Mr Michael Carter, Consultant Neurosurgeon, BRHC

12:10 – SenTiva – Advances in vagus nerve stimulation
             Children’s Epilepsy Surgery Nurses, BRHC

12:40 – BPNA / OPEN UK / Medicinal cannabis Update
             Dr Andrew Mallick / Dr Andrew Lux. Consultant Paediatric Neurologists, BRHC

13:00 – Lunch

14:00 – Everolimus for the treatment of epilepsy
             Dr Sam Amin, Consultant Paediatric Neurologist, BRHC

14:30 – Triple bromide – the first AED: Still useful in the 21st Century?
             Dr Ishita Desai, Clinical Fellow in Paediatric Neurology, BRHC

15:00 – Coffee Break

15:30 – The treatment of infantile spasms – the latest results from ICISS
             Dr Andrew Mallick, Consultant Paediatric Neurologist, BRHC

16:00 – Case Presentations

16:30 – Plans for next meeting / Close